He chased each new day
And kept them locked in his mind,
No hope to grow old.
He chased each new day
And kept them locked in his mind,
No hope to grow old.
Being the change in healthcare by building strong families
Inspiration through my thoughts, experiences and travels
[because it tastes good]
(Formerly known as: Smiling Away Allergies)/ Believer, wife, food allergy mama, teacher, writer, runner and anything else life decides to throw our way while learning to love our mess. Proverbs 31:25
from purple slob to clean queen
A Woman's Journey With Rare Disease
Inspiration for every occasion
bemused razzle-dazzle
Taking it a Step at a Time - Proud Mom to an adult son with Autism
Books News and More
When my thoughts are too full for sleep
Epic battles & love stories larger than life.
stories we tell ourselves
Smile! You’re at the best WordPress.com site ever
Thinking Your Way Through a Labyrinth of Issues
A mix of fact and fiction
I Am Not Sick Boy 
Lovely. I read your “Who is Alex” post as well. I am sorry for your loss but glad that you have thirty years of wonderful memories to hold on to. He sounds like an amazing, talented guy. How lucky you were to have been his mother, and how lucky he to have a mother with such capacity for love.
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Thank you for reading. He was a magical boy and you are so right. I was lucky to have for thirty years! Bless you.❤️
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Very sweet. A lovely young man inside and outside, I’m sure. I noticed you said, “he was.” I am so sorry for your loss. I can not even imagine it. ((Hugs!!)) xo
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Thank you for your kind words. I was truly privileged to have hame in my life!
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Yes, of course you were! I don’t know what you believe, but I believe he is your angel now. ((Hugs!!)) xo
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Absolutely! He promised to stay on my left shoulder until my book is finished.
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How sweet!! May I ask. What did he pass away from? I’m sorry, it is none of my business, it’s just that it breaks my heart for you.
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Of course I don’t mind telling you. After all, that is the purpose of my blog. Alex started his life with sever asthma in and out of hospitals. The time he was ten years old he had severe GERD which preceded an esophagectomy with a portion of his colon put in his place. From then on he was unable to eat and had a G-tube placed in his stomach. Later he was diagnosed with severe narcolepsy. So you can see why this blog is so important to me. To help children with chronic illnesses and their families. Thank you for asking.
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I am so sorry. Poor guy, he really did have to suffer. GERD is no fun and especially to have the problems he had along with it. He was very lucky to have you as his mother.
I have GERD and had surgery done in my stomach. I think they pulled part of my stomach up or something. It has been awhile.
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Wonderfully sweet on many levels.
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Thank you!
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[…] of I’m Not Sick Boy gave us My Alex this week. Not only do we get a view of her world but we get to see a great picture of Her […]
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(Hugs) beautiful.
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Thank you so much.
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What a kind and beautiful face your Alex had Patty!
Diana xo
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Thank you Diana. He was beautiful on the inside and the outside.
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Just look at the wonderful Mom he had. ❤
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So sweet. 😊
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