Hello Everybody,

Tomorrow is Rare Disease Day and I will be putting some things up all day in support of this great event.  I am doing this for everyone with a rare disease, but especially  my beautiful niece Natalie who has lived with a debilitating type of Ehler’s Danlos since she was born.  Let’s think about these people who are struggling alone.  In Natalie’s case their are only forty cases of her type in the world.  In other cases there are just seven or less.  It is difficult to get research or medications for each specific disease because the expense would be too high for so few people.  Please let others know that they are here and they are alive and seeking help!  ❤️

– See more at: http://rarediseaseday.us/raise-your-hand/#sthash.MAAN4tpv.dpuf