Guest post by Jean from London. Jean has Ehlers-Danlos syndrome, a painful condition which means she is prone to muscle tears and dislocated joints. She uses a wheelchair most of the time. Jean is an active campaigner for disability rights. She is sharing her story as part of our 100 days, 100 stories campaign.

At the beginning of 2013, I had to put a complaint in to a London bus company because a driver refused to deploy the ramp and let me on.

Instead of dismissing my complaint, the company actually asked me to go in and speak to the management about how disabled passengers should be treated.

Then they asked me to go in again and speak to the bus drivers – and after a couple of months they said, “How would you feel about us paying you for it?”

Before that, I hadn’t been able to work for seven…