I am sharing this story about two beautiful little girls that are fighting a rare disease.  If a disease is considered ‘rare’, research is probably going to be impossible to fund.  Who would want to do all of that work for just a few?  Also, these children, all children with a rare disease, will not have drugs specific to their illness because Big Pharma wouldn’t want to produce a drug that they would not be benefitting financially from.  These children are living painful, sometimes debilitating, and often shortened lives, and they and their families deserve as much care as any child.  Please read:

http://wtnh.com/2015/06/10/celebs-rally-behind-social-media-campaign-for-little-girls-with-rare-brain-disorder/