I came across this video that I want to share with all of you. It is about a rare disease and how difficult it is to find funding for research on the disease, find medications that could help these children, much less figure out to care for these sweet children, that is if, and when, they finally get diagnosed. I have mentioned before that it takes an average of eight years for a child to be correctly diagnosed. Are you wondering why there is no funding for research, no pharmaceuticals that want to find helpful drugs for children with this disease. The answer is, money. Why should they spend all of that money to research, or find a great medicine (possibly a cure) on a rare disease that maybe a handful of children will be born with each year in the United States?
There is no amount of money that could take the place of one child. Each child on this earth deserves a timely diagnosis, Doctors and scientists who want to research the disease and a Pharma who will find them some help. Most rare diseases are ones that children are born with. Our children are not second-rate, they are our future. How dare anyone stamp a dollar sign on their foreheads?
Ok. My rant is over. Please watch it entirely.
If anyone is interested in what has been going on in terms of research, here is an article that my cousin sent me on this subject.
Dr. Wible has been doing her best to get the word out about how many physician suicides there are. This has become a huge problem. Our broken healthcare system has left many in despair. It is not only physicians. It happens to nurses, Physician Assistants and nurse practitioners, and any other healthcare provider. I watched many friends become drug addicts, alcoholics, and mentally unstable during my years of medical practice. The most difficult for me, personally, was a beautiful young woman who was assigned to be my mentor as I entered the Physician Assistant Program at USC. She would be graduating that year and seemed excited and happy, with a great sense of humor. And, as is common in these cases, she continued to act professionally so as not to leak any signs tears, hesitancy or depression.
I had met with her a few times and spoke to her on the phone at times. Not a full-grown friendship, but we enjoyed each others’ company. On one hot Los Angeles summer day, she had just left the USC County Hospital where her rotation had been. She drove down the street toward the freeway entrance. At the stoplight just before the entrance, she stopped for the red light. She had enough time to pull the gun out that she had sitting on the passenger seat, and shot herself in the head. There was a USC physician behind her and saw the whole thing. He tried valiantly to save her, but it was not to be. This amazingly smart, and gorgeous twenty-eight year old, with the world at her fingertips was gone in a blink of an eye. This happens too many times in the medical field. We deserve mental care as much as our patients do. It should not cost us our career.
Dr. Wible had this interview on “BOLD” the other day. Please listen. If you find it interesting, please share. We need to make the world aware.