I stand quietly

Read this and see what a day in a child’s life who has an invisible disease. We need to find some changes and compassion.

Dirty, Naked & Happy

I stand quietly while you do somersaults on the bed as you aren’t being naughty, you are just trying to get your out of sync body under control.

I stand quietly by the toilet door every time you need to go, and come with you around the house, and sometimes even just across the room, because I know you can feel truly frightened when you are not near me.

I stand quietly at the supermarket checkout while everyone stares at you barking like a dog and blowing raspberries on my arms to cope with the buzzing lights.

I stand quietly while you tell the baffled shop owner that you are looking for shoes that feel hard like splintered wood because your skin can’t bear soft things.

I stand quietly when the attendant gives us scornful looks when I ask for the key to the disabled toilet because the hand dryer…

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10 thoughts on “I stand quietly

  1. I read this post here

    This lady is an autistic woman with physical problems who is mother to a severely autistic son. She said this post made her weep. It made me weep too. I have a nephew with asperger’s he is in his thirties, he has a job but he still needs care. I am grateful for my three grown up sons, grateful that for all the trials we have had they not a patch on what parents of autistic child go through . That said as a mother these ladies would not have it differently… Unless she could wave a magic wand.

    Liked by 1 person

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