29 | April | 2015 | I Am Not Sick Boy

Tourette Syndrome (TS) is considered a chronic condition that is first noticed in childhood and lasts a lifetime. The worst symptoms usually are in their early teens and continues through late teens into adulthood. It does seem to run in families, but the experts that ‘be’ do not agree on whether or not it is inherited. TS has been thought to stem from parts of the brain, especially the basal ganglia, where nerve cells and the chemicals carry messages to control body movements. Researchers continue to look for the cause of the problem.

Tourette Syndrome was first described by a French Neurologist, Dr, Georges Gilles de la Tourette in 1885. It is defined as a neurological disorder characterized by repetitive, involuntary movements and sounds called tics. A tic is something like a twitch or a hiccup that is not planned or wanted. To be diagnosed with Tourette Syndrome, a person must have at least two tics that affect body movement and one that is a sound. About 100,000 to 200,000 people in the United States have Tourette Syndrome. It occurs in all ethnic groups, and three to four times more males are affected than females.

The child may frequently have more than one tic at one time and they can continue for the entire day. The one time the child seems to get some relief is when he/she is relaxing (listening to music), or concentrating (working on the computer) It may not completely go away, but much less. But under stress (studying for a test) or excited (a party or sports game) the tics usually get worse. Over time the type of tic usually changes, and as the person is coming into adulthood, they become less frequent. It is rare for an extreme case of Tourette’s to continue into adulthood. Most children are on medications. It is not unusual for the child to have other disorders, such as ADHD, or OCD. It is important to identify and diagnose the condition and treat them appropriately.

There are two types of tics:

Motor Tics:

1. Arm or head jerking

2. Blinking

3. Making a Face

4. Mouth Twitching

5. Shoulder Shrugging

Vocal Tics

1. Barking and Yelping

2. Clearing your throat or grunting

3. Coughing or Sniffing

4. Shouting or swearing

5. Repeating what others say

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#35 – It is shocking how true this is. In the beginning, you think and expect that you and your child will be treated with respect and compassion. But it is true that you will find the opposite. Some will be short with you, make you feel ‘stupid’, and you will be sent to an endless line of specialists with the same, or worse attitudes. With that being said, you are also in a unique position that other moms will never know. The many hours in the Emergency Room and hospital visits and the time necessary to be a special mom for your special child gives you a bond that is difficult to imagine. I remember the last night that my son was here on this earth. We had just come home from the ER, then to Denny’s (as was our custom) and he hugged me tight and told me that he appreciated all of the time we had together, that even as he was an adult I was there with him, and especially that I always allowed him to be the person that he wanted to be. We said good night. I found him the next morning cold and blue in his tiltabed (his name for his adjustable bed) , one of the hardest, most devastating days of my life. But, I knew he was ready. I would never be. I would always Love Love Love that I was chosen to be his MOM.

I am reblogging this from The Mighty:

http://themighty.com/2015/04/35-secrets-of-being-a-special-needs-parent/